My guts, my decision.....

My dad always told me to work at a job for a full year before you quit and move on. He told me this when I was in high school and I was working at the illustrious Dairy Queen. On my one year anniversary of starting that job, I quit. So, in the same vein, I have decided to give the ostomy take down surgery a full year before I move on to bigger and better things. On February 27, it will be one full year since my ostomy take down surgery. At that point, if I do not have the quality of life that I had with my ileostomy, I will have to try something else. I have already let my doctor know that I am interested in trying additional drugs to heal my RV fistulas, and he doesn't seem to acknowledge that. Apparently, when you can brag about having only the holes you were born with, you have a difficult time understanding others (like me) that have holes created by both surgeons and disease activity.
Clearly, there are a number of issues here. To help myself, I have tried to compartmentalize the various elements of my upcoming decision.
-Fistula activity VS Scar tissue from previous grafts : Surgeons generally don't want to perform multiple surgeries on the same area due to increased problems and risks.
-Present GI activity VS Possible ostomy surgery & scar tissue/adhesions : same deal as above
-Combo deal of fistula & GI symptoms that not respond to current meds : I have had Crohn's disease for the last 7 years. I know that I am one of the special cases that do not respond to even the most innovative and experimental medications. My current situation is that my veins have been burned and shot due to various infusions. To add a little spice to all of this, I have a mediport so I am unable to provide adequate venous access without the use of the port.
-Docs that are unclear or unwilling to listen to what I want to do with my body. Curious situation. Seems my GI is also unclear about the concept of a referral. When I asked my doc about this, I was denied. Once again, this is MY BODY.
-TO further complicate things, I've been in this rodeo before. I know the effects of the meds on my body, and I know the pain associated with both abdominal and tissue graft surgeries. Heads up ~ it it not fun. There are not enough drugs in the world to make me comfortable after having a substantial surgery.
Well, to sum it all up, I don't know exactly what to do, but at the end of February, I will have to make some kind of decision regarding my health and subsequent quality of life. I am welcome to suggestions, however, I do not appreciate my family calling me up and interrogating me as to why I haven't done whatever they think I should do.
Ponder...ponder...ponder.... Have a healthy day! Beth