Wednesday, February 06, 2008

Support IBDers!!!

SSS Patient Support Comments Home Page
WELCOME!



You’ve been sent to this page by some of your IBD and Ostomy networks, friends, and family. Please open the link and read the comments we’ve compiled to voice your right to be considered if you should ever have to seek Social Security Disability Insurance from the Social Security Administration. (Please note that while the document is still technically a draft, we are not asking for more comments, just signatures.)



Patient Comments document.


If you agree with these comments, please send an email to:



PatientSSACommSigs@verizon.net



Your signature in the body of the email is simply:



Your name

Your city, your State

Your digestive and companion disease titles



Your name will be added to the master copy of these comments which will then be sent to

SSA Commissioner, Mr. Michael J. Astrue, by the Patient Comment Submission Deadline.



In order to make our deadline, your submission deadline is February 10 at 12 noon.



When we have compiled your signatures and turned it in to SSA, we will keep this link to the document so you can view your name, added in as one loud voice. We will add the SSA link where these and all comments must be published for public access.



You may be worried about the direction your country has taken. You may have fought your disease and health care system for years. You may have worked the hardest you’ve ever worked, during the weakest point in your life … just to apply for SSDI consideration. And you may have been turned down. If you have a digestive disease, you deserve empowerment.



Thank you!



You can view the Physician’s Comments submitted and the signatures of GI doctors and Associations that SSA will be reviewing: Physicians’ Comments



Please bookmark this page. At some (presently unknown) date in the future, there will be actual Proposed Rules put forth by SSA, on which we will again have an opportunity to comment. We will, of course, notify everyone who signs through our system when this happens. There will be a 60-day period at that time for making comments on the proposed rules.



Also, we promise that we will not use the names and email addresses sent to us for commercial or any other purpose other than what we're talking about here, to append to the Comments document that will be submitted to SSA.

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About Me

Married for 7 wonderful years to Glenn, my have to have. One extremely spoiled & wonderfully adorable 4-legged child, Ellybelly Jellybelly, the Amazing Pup. Every day I survive Crohn's disease, along with secondary diagnoses of Hidradentitis Suppurativa, OCD and PCOS. But you know what? I want to rock & roll all night, and part of every day! So there! My life rocks!!!!

The Face of Cute

The Face of Cute
Sweet Ellybelly
"When the first baby laughed for the first time,
the laugh broke into a thousand pieces and they
all went skipping about, and that was the beginning of fairies." J.M. Barrie, Peter Pan