Well, it is finally the weekend. And I have been having a lot of 'awake-time' with this stomach bug. Of course, the other option (the very, very bleak option) is that I do not, in fact, have a stomach bug and instead, this is just the natural progression of my Crohn's disease.
You know, in the majority of twelve-step recovery programs, the newly sober are often told by others, who have relapsed, that the disease of alcoholism continually progresses, regardless of if you are actively drinking or not. In other words, after let's say 20 years of sobriety you (a recovering alkie) begin drinking again, it is as if you had never stopped drinking. The disease progresses even without you actively involved. Along this same train of thought, the same can be said *possibly* of Crohn's disease. This is just a hypothesis of mine, but assuming alcoholism can progress without your direct involvement then maybe so can CD ~in my case my ostomy for two and a half years would equal sobriety~,
I guess I am trying to say that after a week and a half of dealing with this "bug", it scares the heck out of me that this could just be active Crohn's. Before my surgery, I was told that my ostomates who get their ostomy reversed know very shortly, usually within about 6 - 8 weeks, how active their CD will be. Incidentally, I am just a few days shy of being 7 weeks post-op, so this could just be my reality again, like it was before the ostomy. But I was also told that the longer the diversionary ostomy is in place, the longer it takes the guts to stabilize. And the "normal" time frame of diversionary ostomy reversal is about 6-8 weeks. So, one option is relatively good and the other is not so great. AND if it does happen to be 'just' active CD, then there are more stinking drugs to try before eventually redoing the ostomy. But the good news in all of that is that there is a better quality of life ahead, one way or another. Some folks don't even have that hope to go on, and I have the knowledge that another ostomy surgery is possible and probable if that is the only way to have any kind of life. But there is still a solution for me, sometime in the future. Clearly, this is not bad at all in the scheme of things. But first I have to continue to trudge the road to happy destiny. Trudge. Trudge. Trudge.
Keep on truckin'!
Saturday, April 15, 2006
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- Married for 7 wonderful years to Glenn, my have to have. One extremely spoiled & wonderfully adorable 4-legged child, Ellybelly Jellybelly, the Amazing Pup. Every day I survive Crohn's disease, along with secondary diagnoses of Hidradentitis Suppurativa, OCD and PCOS. But you know what? I want to rock & roll all night, and part of every day! So there! My life rocks!!!!
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