Tuesday, June 05, 2007

Yowsers! Some days just suck. Yep

I could probably just stop with the title and you would get the drift, but I want you, the reader, to really get a sense of what is going on in my incredibly mucked up body. Starting around last Thursday, I began having lots of active Crohn's disease, including two of my favs, constant bathroom trips and puking. Between Thursday & Friday I was in the bathroom for no less than a total of 6 hours. I took a number of drugs (lomotal, immodium, paregoric, etc) to calm down the guts and ended up very dehydrated. I know better than this because I have been aptly warned by all of my gi docs, and have myself experienced dehydration. It just comes with the territory. Symptoms include headache, dry mouth, white lips, and inability to urinate (not to mention feeling like damnit in the meanwhile). It usually ends up with a trip to hospital, a couple bags of saline, and a conservative estimate of at least 12 hours of my life in the ER waiting room with some rather unsavory folks. Sucks. By Monday, I had spent even more time in my cozy little restroom, and was being awakened every 2 hours to be force-fed liquids by the hubby. At some point Monday, I was doing pretty good on the liquid intake, though the other parts and pieces were still bothering me. Fast forward to today. At least 2 full hours in the restroom this afternoon/evening. More meds & liquids. During this general period of almost a week, I have slacked on my regular AM & PM meds, not particularly wanting to vomit them back up again. Those suckers cost moolah, don't you know. After quite a lot of time in the restroom, I just wanted to keep the fluids moving and relax. This evening, I found two additional cysts caused by my Hidradentitus Suppurativa. And these cysts are active because I haven't been taking the 200 mg of Doxy (antibiotics) daily due to the whole vomiting issue. So I used all my magical prescription potions on my multiple abbesses, threw back some saltines, and got myself back on my regular daily meds again. Just after dealing with the cysts, I came to sit at the computer and check my emails (after a few more bathroom visits) and as I sat on my donut pillow, I actually did a jump & scream combo out of pain. Looks like I have a brand spanking new pea-sized fistula that is rock hard and extremely painful. After applying lidocaine to the area, and crying for a short bit, I really don't know what to do anymore. I just don't. I am tired of spending hours of my day dealing with my GI issues, including virtually constant pain associated with Crohn's and all my other conditions. And I am not exactly thrilled with my docs or their nurses right now. I have made several calls trying to my test results from a freaking month ago, all to no avail. So as of right now, I am feeling a bit down, in a lot of pain , and trying to drink as much fluids as possible. But I will persevere. I freaking hope so anyhow.

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About Me

Married for 7 wonderful years to Glenn, my have to have. One extremely spoiled & wonderfully adorable 4-legged child, Ellybelly Jellybelly, the Amazing Pup. Every day I survive Crohn's disease, along with secondary diagnoses of Hidradentitis Suppurativa, OCD and PCOS. But you know what? I want to rock & roll all night, and part of every day! So there! My life rocks!!!!

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The Face of Cute
Sweet Ellybelly
"When the first baby laughed for the first time,
the laugh broke into a thousand pieces and they
all went skipping about, and that was the beginning of fairies." J.M. Barrie, Peter Pan